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Sunday, January 22, 2012

Remission First....

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Hello, everyone.  Andrew has been doing surprisingly well!  Even though the chemo drugs are double the dosage compared to his first round of chemo three years, Andrew's nausea has been at a minimum.  And he even has eaten regularly. I know it is because of the prayers of many that Andrew is doing so well!  We really feel the presence of God throughout the day.

I know there is great movement to have as many people tested in order to help find a bone marrow donor match for Andrew and perhaps one of ten thousand on the national registry waiting for a life saving transplant. But the reality is this:
WE NEED TO GET ANDREW INTO REMISSION FIRST!  IF NOT HE WILL DIE.  Not to be so morbid or straight forward, but that is the reality.
THE SINGLE MOST IMPORTANT PRAYER REQUEST THAT I WILL MAKE AT THIS MOMENT IS THAT CHEMOTHERAPY WILL GO WELL AND THAT ANDREW WILL BE IN REMISSION SO THAT HE MAY GET A BONE MARROW TRANSPLANT TO POSSIBLY CURE HIM.

Andrew had many visitors today and they asked about his condition.  I told them Andrew needs to get healthy first and right away, to have any shot of getting a bone marrow transplant or he will die. Again, I had no remission data or survival rates to give to due to the rarity of Andrew's case.  I wish there were some odds, but all we can do is ask everyday that our Lord and Savior have mercy on this poor child and cure him.

As mentioned we had many visitors today and included in these visitors were the Kim Family which we have known for sixteen years, Joe, Michelle and their kids Joseph, Christina and Ben.  We have gone on my many vacations together and we consider them one of our closest friends.  I was so pleased in seeing Andrew acting somewhat of a normal kid as Joseph and Ben played XBox.  Andrew was smiling and joking around with his friends.  Even as his three chemo drugs were being administered in the midst of this mini party, Andrew was still yucking it up with his friends.  Dan "the man" Sung, my closest friend, his wife Mary and the kids visited as well. I been very humbled at how  Dan has gone out of his way to do whatever he practically can  to help Andrew and our family, from meeting for dinner to just let me be, to taking the time to get my car fixed with the help of Mike Choi!  Moreover, we were pleased to see some Godly man from our church (Calvary), Jerry Kim, Sung Jai Lee and Steve Ha and youth pastor Seichi, Jerry's son Brandon and Steve's son Andrew, earlier today.  I was so appreciative for their visit and the beautiful time of prayer for Andrew.  It was such a blessing to hear not only the men of Calvary pray but also the son's as well.  It was powerful!

The Kim kids and Bry in the backround  Notice Andrew's huge grin?
 As I told you, Andrew has been doing fairly well, but as I have been writing this, Andrew's stomach started hurting.  Yep,that pain!  For those that have followed Andrew's health the past few years know that Andrew has been in the e.r. and subsequent admissions for pancreatitis and other g.i. issues over 40 times!  They have him npo (no food or liquids) and they are drawing blood to see if his pancreatic enzyme levels are too high.  And he is getting a i.v. pain med for relief. If he has pancreatitis, that surely would be adding insult to injury. While playing xbox with his friends and getting chemo at the same time, the staff would check his blood pressure regularly because of the the side effects of a drug is low blood pressure and respiration.  The opposite was going on Drew's bp was climbing high and his face was rather flush.  So he was ordered  to get off his xbox and rest.  That did the trick!
In a more somber note, Andrew's spinal tap earlier came back positive for cancerous cells in his spinal fluid.  According to Dr. Morgan, this is not considered a "spread" of the cancer, but a reality that happens to leukemia/lymphoma patients.  As a result, he will have weekly spinal taps with a chemo drug called cytaribine, which he is also getting through i.v. daily, injected via the tap. Yippy!

***UPDATE: THE DOCTORS JUST GOT LABS BACK SAYING THAT ANDREW HAS PANCREATITIS AND HIS ENZYME LEVELS ARE VERY ELEVATED!
PLEASE PRAY FOR THE LEVELS TO GO DOWN SOON. PRAY THAT THE PANCREATITIS WILL NOT INTERFERE WITH HIS CURRENT CHEMO! 


Here is some info on the bone marrow testing and donation.  I implore you to take a few minutes to check out Bethematch.org and view the steps to become a potential life saving donor to Andrew or any of the ten thousand that are in need of a transplant. 
Please take a brief moment to take a look at this informative video on bone marrow donation, this video is also on the bethematch.com site.


THERE WILL BE A BONE MARROW DRIVE  SUNDAY JANUARY 29TH FROM
11AM TO 1PM (OR BEYOND) AT:

Calvary Presbyterian Church
704 McHenry Road, Wheeling, IL





I will get more specific information to you as soon as possible.  Although the odds of finding a marrow match will be more likely in the asian community, our Dr. explained that Andrew may very well find a caucasian donor in Liverpool England.  Just because you may be a brother or sister of the lesser or greater hue, don't let that deter you from coming out to see if you are a match for Andrew or anyone else.  

As I was watching the Be the Match video on donation, I was overwhelmed with emotions, because I know that there may be a match that comes from this drive and possibly save my son.  WILL YOU PRACTICALLY ACT ON YOUR FAITH TODAY AND GET TESTED? God bless you for your consideration and Andrew thanks you!
PLEASE SPREAD THE WORD TO AS MANY PEOPLE AS YOU CAN!  REPOST AND/OR GIVE THIS LINK ON FACEBOOK, TWEET THIS LINK, EMAIL BLAST! PLEASE DO WHATEVER YOU CAN TO SPREAD THE WORD! ANDREW'S LIFE MAY DEPEND ON IT!




















2 comments:

  1. Joe and family, my heart is aching, breaking and praying for Andrew and you all. Just wanted to let you know. Thank you for sharing, I can only hope that God's purpose for going through this is revealed but more than that, I pray that the peace that transcends all understanding permeate your hearts.

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  2. Joe, Jennifer, Andrew & Emily...We continue to lift all of you up for His mercy. Please know that we are praying throughout the day for Andrews remission and now the pancreatitis and enzyme level.

    Isaiah 41:10
    So do not fear, for I am with you; do not be dismayed, for I am your God.
    I will strengthen you and help you; I will uphold you with my righteous right hand.

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