I just spoke with Andrew's stem cell doctor and the prognosis is not good. Andrew as you know has been on a respirator for over two weeks and his lungs are not getting better. They may be clear, but the pressure required to keep him breathing is not getting lower. If fact they have had to raise the pressure. His fluid removal is not the key factor anymore. Andrew's stool has turned to diarrhea and that is a sign of gvhd. They will perform a biopsy through a colonoscopy at noon today to determine if it is gvhd. The biopsy results will come back by sometime early tomorrow morning. The doctors have said if he does have gvhd of the the gut, his chance of making it are not good. Andrew is on every gvhd drug to help treat it and if he does have gvhd that means the therapies are not working well.
So with that being said, if it is gvhd of the gut and the stool becomes bloody or he becomes more in pain, we will need to determine if we want to continue his treatment or stop. We will need to determine whether we want to be more aggressive, with chances of him not getting better great, balanced with the fact if he is in pain. Yesterday, Andrew had pain in is stomach! The more aggressive route may make him even more susceptible to infection as well. If he is in pain, we don't want him to suffer and will have to make the tough decision to stop treatment, manage his pain and let him be in peace.
Dr, Sonali has always been straight forward with us. We call her the "doom and gloom" doctor because of how straight forward she is prognosis. She was straight forward today! On paper the chances of Andrew making it if he has gvhd of the gut is poor at best. So, with that being said, I here are my desperate prayer requests and petitions to our God:
-Pray Andrew's lungs will improve drastically! Pray the pressure required on the respirator for him to breathe would become less and less.
-PRAY THAT THERE IS NO GVND OF THE GUT. PRAY FOR A MIRACLE! PRAY THE BIOPSY WOULD BE NEGATIVE FOR GVHD! THE BIOPSY WILL BE PERFORMED AROUND NOON TODAY.
-PRAY ANDREW WOULD BE IN COMFORT AND THE TEAM WOULD BE ABLE TO MANAGE HIS PAIN.
-PRAY FOR JENNIFER, YUN AND MYSELF. PRAY THAT WE CAN BE STRONG FOR EACH OTHER AND ESPECIALLY ANDREW.
***PLEASE SPREAD THE WORD, SO WE CAN HAVE GOD'S ELECT PRAYING FOR ANDREW AND A MIRACLE TO BE DONE!
I am in shock right now and very emotional. Please cover us and especially Andrew is prayer. We were in a desperate situation right now.