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Monday, June 18, 2012

DAY 16 in ICU...Day 33 Post Transplant.

6/18 (3pm)

Sorry for not posting since Thursday, but to tell you the truth, I have been running on vapors.  Jennifer took over for me the other day and I finally got some rest on my own bed.  Although the new hospital has new pull put out sofas, Jenn and I really never can get a good nights rest, because of all the alarms, beeps and Andrew being constantly change because of bowel movements.  The nurses can do the job, but it takes extra hands trying to move a 180 pound young man.

Andrew's condition has not changed drastically since Thursday, although his lungs are clearing up slowly but surely. His lungs are getting better but his respirator settings are still set for high lung pressure. Andrew's is on constant dialysis (crt) for fluid removal.  The approach of the doctors are slow and steady.  As stated earlier, if the rate of the fluid removal is too high, there is risk of lowered blood pressure and the need for more meds or reducing of the flow rate.  Andrew's bilirubin levels are going up and down, but the levels are not too high.  He is being treated for both gvhd and vod of liver, so he is covered for both just in case.  Andrew for the past several days has been more lucid and responsive.  Although he is heavily sedated and on pain meds around the clock, he has nodded and shaken his head to questions.  He will show you with a grimace on his face if he doesn't like something.  It's okay for him to be awake at times, but the question is whether he is in pain or not.  The last post, I mentioned the thrill of Andrew squeezing my hand strong an firm.  And on Father's Day, Andrew gave me a Father's Day squeeze.  He not only gave me a squeeze, but he has done it for Jennifer and yesterday, he gave one for Uncle Dom;-)  Auntie Tina and  Uncle Dom visited and when we mentioned they were at his bed side, he started to move.  It was an emotional experience for Dom and Tina.  Andrew loves his Uncle Dom, Auntie Tina, Baby D and Baby Rocco.

I want to thank all of Andrew's friends, family and loved ones who have sent pictures for me to post on his flat screen in his room.  He may not see them now, but he definitely will be surprised when he wakes up.  And I long for the day when he can ween off his respirator and wake up.  Please continue to pray for him!

PRAY FOR:


-LUNGS TO CONTINUE TO CLEAR UP TO THE POINT HE CAN START WEENING OFF HIS RESPIRATOR. 


-PRAY FOR THE LIVER TO HEEL AND THE BILIRUBIN LEVELS WILL NOT RISE.  


-PRAY FOR WISDOM ON HIS TEAM OF DOCTORS AN NURSES.  


-PRAY FOR JENN AND I FOR STRENGTH AND WISDOM AS WE TRY TO ADVOCATE FOR OUR SON.


-PRAY FOR CONNOR, STEPHANIE AND STEVE AS THEY TRY TO DEAL WITH THE APPARENT FAILURE OF CONNOR'S BMT.  PRAY FOR THE MIRACLE THAT CONNOR'S DONOR CELLS WOULD ENGRAFT!


I will post a personal note on this past Father's Day and what it meant to me. Tomorrow.

Thanks,
Joe




2 comments:

  1. Thank you, Joe, for this post. Way to go, Andrew, on all your hard work as well as your much-needed responses! Andrew, you have the most devoted and coolest parents and sisters on this planet! When I think of your family, it is love, faith and dedication all around.
    Peace and progress,
    LynnFrankLaurenKendall
    With love

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  2. slow and steady is the way to go! I for one am relieved to hear the words STABLE and MORE RESPONSIVE. That's a huge leap from a week ago...look back at your posts from time to time and remind yourself about the progress Andrew has made! Slow but steady. Slow and steady win the race everytime you know...whatever that race may be.
    Take care, Joe!

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